Refining the art of waiting
I’m at Bradley waiting for flight to San Diego to visit Dylan and family. I booked this flight last August coming off a family vacation at lake sunapee New Hampshire. First time ever with Dylan and Corrina and their significant others and offspring on vacation. I’d be telling a story if I said there were more times than just once when I wondered what I was thinking when I planned that vacation.
Getting back to normal
It's been hard to find a quiet moment to put my thoughts down. Outside of everything in my life changing, my home is now a revolving door. This is the complete opposite of my previous existence - a quiet, calm space where I always knew exactly who would be coming, going and when.
What to say???
It's so difficult to find the words to express the love, fear, pain and utter disbelief that I feel every waking day. I've heard and read the same from so many friends, family and strangers that they have no words to say or write. It's the silence that I totally understand where this person is coming from and what they want to tell me but are unable to. A hug, a look in the eye, or even a quick nod are all that I need to know that you are there walking every step of the way with me.
Organizing Support
The outpouring of support we've received from all of you has been incredible. Without question, the first silver lining visible in all of this has been witnessing the magnitude to which the community has rallied to provide Corrina (and her family) with support. "Thank you" doesn't begin to frame our gratitude adequately.
Corrina's Handler
I've got a new job…Corrina's Handler…&…I love it and Corrina, too. I smile when Corrina will turn to the person at the front, back or corner desk at the clinics and hospitals we've visited this past month and she gently reminds them that they are directing their questions to the wrong person (herself or David, her partner) and should be directing their questions to her mom.
East vs. West and Small Victories Along the Way
Well, we're deep into it at this point.
Corrina is into her second week of radiation and chemotherapy and, for the most part, is doing exceptionally well. That being said, the first mile of this journey has already had its bumps in the road.
Starting Team Lineup
Scouting's complete, the draft is done, trades have been finalized, and the official starting team is now assembled and already performing as swiftly and aggressively as we had hoped.
Not unlike the brave fighters of Seal Team-Six, I'm calling this task force Heal Team-C.
Rini - few words in her kitchen last night
Mom - I've always been a fixer for you and Dylan. This is the one thing that I can't fix. If I could, I would trade places with you.
Rini - But then I would be sad.
Here we go...
I do not have the words to come even close to expressing my gratitude to each and every one of you. It is beyond me. To feel the overwhelming outpouring and love and support you’ve offered to me so freely has cracked me open. Thank you from the deepest place within me.
A Plan Emerges
The past week has been spent exploring and vetting second (and third and fourth) opinions.
Although we have one more doctor to meet with, we now feel like we have a defined plan that will vary only slightly based on our final choice of oncologist.
Day 15 - The Inbetweeners
Corrina and I traveled to New Haven early this morning for a second opinion at Yale/Smilow Cancer Center. It was an incredibly long day from the drive in the car, to the time spent at the hospital, to the drive back home.
Home is where the healing is...
...and we're back.
We brought Corrina home around 6pm this evening, leaving the depressing state of corporate rehabilitation behind us. I had no idea getting out of a facility would be as hard as it was. Much, much harder than getting in.
Channeling Michael Scofield
We’re busting Corrina out of here tomorrow. This is not the place for Corrina to gain strength and get ready for what lies ahead. Being here has taken a toll on her sweet and steady spirit. Corrina is getting around rather slowly and tentatively and can do the same at home with her loving peeps hanging out with her in a much more comfy and peaceful environment.
Love people - cook them tasty food
Whenever the going gets tough for me and others, I cook. I love delivering home made meals to friends, family and even strangers in need of food that has taken time to prepare. I have always prided myself on using ingredients that don't come from a box or can.
The Reservoir
Last night, Corrina was discharged and transferred to an inpatient rehabilitation facility in West Hartford known as the Reservoir. It's directly across the street from the actual reservoir which is Corrina's favorite place to hike.
My lovely warrior
Moving on to another day. So many family, friends and David, Corrina’s big steady love, all commented yesterday that God was crying. It was a gloomy rainy day inside and out. I will be totally honest - I’ve cried enough tears this week to fill the Farmington Avenue Reservoir.
Post-Biopsy
We did not get the news we wanted to hear this morning.
Unfortunately, the initial results from the biopsy reveal a tumor within the glioma family, possibly glioblastoma, the most aggressive form.
Pre-Surgery
Hi all – Thank you so much for your kind words and thoughts. I definitely do not have the energy to respond to each of you individually as I would really like to do (my right arm & hand are moving pretty slow) so please know that I’ve read each of your messages many times and I can clearly feel your love and support. Thank you.